Alexion joins EURORDIS.

But very much work remains to greatly help patients experiencing rare diseases, and we are accelerating our applications to develop life-transforming therapies for additional rare and severe disorders.’ Rare Disease Day 2011 coincides with The NASDAQ Stock Market’s recognition of Alexion‘s 15th anniversary as a listed company at this morning’s Marketplace Open ceremony. With the goal of breaking new floor in rare diseases, Alexion established a translational medicine group in Cambridge recently, Massachusetts to accelerate the development of an extended portfolio of innovative preclinical compounds. One such compound is an investigational treatment for newborn children with molybdenum cofactor deficiency Type A, a catastrophic, ultra-rare genetic disorder that strikes newborns and currently does not have any treatment options..It seems there is little consultation with medical staff regarding the look and today a team of specialized experts is working at a healthcare facility in attempts to rectify the issues plus a fire and protection audit. THE HIGHER Western Area Health Service hasn’t disputed the safety issues and says they will work to resolve the serious concern and agreed to doctors’ demands not to demolish the outdated hospital just yet and say clinicians were engaged in ‘extensive consultation’. Opposition Innovator, Barry O’Farrell, says the case is just one more example of the Government and the Health minister Reba Meagher failing woefully to listen to frontline health workers.